Understanding the Use of Patient Reported Outcomes in Colorectal Cancer: Experience of a Canadian Hospital

Understanding the Use of Patient Reported Outcomes in Colorectal Cancer: Experience of a Canadian Hospital

Pages:33 pages26 min read

Author: Chad Leaver, Eva Villalba, Isabella Moroz, Jade Marcotte, Karine Lapage


This quality improvement project examines the utilization of patient-reported outcomes (PROs) in patients with colorectal cancer at the Jewish General Hospital, Montréal. Healthcare providers’ attitudes toward using PROs are very positive.

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  • Patient-reported outcomes (PROs) are direct reports from patients about their own health, quality of life, and/or functional status. They relate to healthcare services (routine or specialized) or treatments patients have received on their care journey. When care teams use PROs, they facilitate patient-centred care and foster better engagement between patients and their healthcare team.
  • The implementation, administration, and applied use of PROs, a primary pillar of value-based healthcare (VBHC), is a significant organizational undertaking involving care teams, integrated information technology, and support services.
  • As part of a quality improvement initiative focused on the use of PROs with colorectal cancer patients, we collaborated with the Segal Cancer Centre at the Jewish General Hospital (JGH) of the Centre intégré universitaire de santé et de services sociaux (CIUSSS) du Centre-Ouest-de-l’Île-de-Montréal to explore opportunities to improve the systematic collection and use of PROs to support patient care and clinical excellence.

Key Findings
Types of Patient Outcomes
Data Processing Steps
What Are Patient Outcomes and Why Are They Important?
Which Patient Outcomes Should Be Collected?
A Quality Improvement Initiative for Outcome Measurement in Patients With Colorectal Cancer at the Jewish General Hospital
Segal Cancer Centre at the Jewish Genral Hospital
Objective 1: What Clinical- and Patient-Reported Outcomes Are Collected For Patients With Colorectal Cancer at the JGH and in Which Databases are They Compiled?
Objective 2a: Healthcare Providers’ Awareness of Outcomes Being Collected at the Hospital Level
Objective 2b: Do Healthcare Providers Use PROs in Their Practice?
Lessons Learned and the Path Forward
Final Remarks

Appendix A—Definitions

Appendix B—ICHOM Standard Set for Patients With Colorectal Cancer

Appendix C—Methodology

Appendix D—List of ICHOM-Recommended Outcomes for Colorectal Cancer and the Databases at JGH Where They Are Compiled

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