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Multiple Sclerosis in the Workplace: Supporting Successful Employment Experiences The Conference Board of Canada, 91 pages, May 24, 2016 Report by Philip Astles , Thy Dinh , Karen Turpin

Multiple Sclerosis in the Workplace: Supporting Successful Employment Experiences

The Conference Board of Canada, 91 pages, May 24, 2016
Report by Philip Astles , Thy Dinh , Karen Turpin

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The aims of this report are to provide a high-level understanding of the MS experience in Canada as it pertains to employment issues, and to describe the relative success of treatments and strategies to mitigate the impacts of the disease in the workplace. This report is fully accessible for individuals using assistive technologies. Document Highlights Multiple Sclerosis (MS) is a significant health and economic issue in Canada. Decreased workforce participation from people living with MS is often detrimental to the health and financial situation of people living with the disease, as well as to their families and primary caregivers. In addition, lost productivity associated with the disease may cost Canada hundreds of millions of dollars per year. The report explores these issues and summarizes recommended actions required by stakeholders to support better quality of life and productivity among individuals with MS, as well as their caregivers. The information and insights in this report were derived from two main phases of research. The first phase, a literature review, resulted in a discussion guide. This was used as the starting point for the second phase of research that consisted of a facilitated stakeholder workshop, held in late 2015. Together, the results from both of these phases provide the basis for this report. Table of Contents Executive Summary Chapter 1–Introduction What Is MS? Challenges in the Workplace The Focus of This Research The Health and Economic Burden of MS in Canada Chapter 2–Insights From a Review of the Literature Literature Review Methodology Success in the Workplace Disability and MS Interventions and Strategies for Individuals With MS Employee Benefits Health Care System Caregiver Burden and Support Chapter 3–Insights From a Stakeholder Workshop Stakeholder Workshop Methodology Challenges to Change Top Three Recommendations Chapter 4–Key Messages Actions for Specific Stakeholder Groups Appendix A–Literature Review Methodology Appendix B–The Value of Specialty Medications: An Employer Perspective Appendix C–Bibliography

The aims of this report are to provide a high-level understanding of the MS experience in Canada as it pertains to employment issues, and to describe the relative success of treatments and strategies to mitigate the impacts of the disease in the workplace.

This report is fully accessible for individuals using assistive technologies.

Document Highlights

Multiple Sclerosis (MS) is a significant health and economic issue in Canada. Decreased workforce participation from people living with MS is often detrimental to the health and financial situation of people living with the disease, as well as to their families and primary caregivers. In addition, lost productivity associated with the disease may cost Canada hundreds of millions of dollars per year. The report explores these issues and summarizes recommended actions required by stakeholders to support better quality of life and productivity among individuals with MS, as well as their caregivers.

The information and insights in this report were derived from two main phases of research. The first phase, a literature review, resulted in a discussion guide. This was used as the starting point for the second phase of research that consisted of a facilitated stakeholder workshop, held in late 2015. Together, the results from both of these phases provide the basis for this report.

Executive Summary

Chapter 1–Introduction