Navigating Health Care for Children: The NaviCare/SoinsNavi Solution

The Conference Board of Canada, May 31, 2017
Recorded Webinar
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People with complex health conditions use a significant percentage of our health system resources. As individuals, they are faced with the constant struggle to manage their condition while navigating an increasingly complex health and social services system. This struggle can be even more acute when the patient is a child. The impact of care for children affects all family members; dealing with multiple care providers, travelling to distant specialty clinics and hospitals, restrictions in access, and other financial challenges.

15-18% of North American children have been diagnosed with a complex health condition. In light of this, the New Brunswick Children's Foundation awarded a $750,000 grant to fund research on the implementation of a family-centred navigation service called NaviCare/SoinsNavi. Led by researchers from the University of New Brunswick and Mount Alison University, who partnered with Sykes Assistance Services Corporation, NaviCare/SoinsNavi's vision is that every child with a complex health condition receives the treatment they require, in a timely manner and in the appropriate setting for their family.

Webinar Highlights

During this 60 minute webinar, we will:

  • Provide a definition for complex childhood health conditions
  • Describe the research that has led to the creation of NaviCare/SoinsNavi
  • identify real life family challenges in caring for a child with a complex health condition
  • Share lessons learned thus far and NaviCare/SoinsNavi’s plan for next steps:
    • Mission and governance (i.e., Family Advisory Council)
    • Current development stage and sustainability
  • Highlight the unique role of our patient navigator in serving families of children with a complex health condition across NB

NaviCare/SoinsNavi is a bilingual virtual navigation centre in NB for children 19 years of age or younger with a complex health conditions. The primary aim of the centre is to help facilitate more convenient and integrated health, social, and educational care through the use of a patient navigator, who is also a registered nurse.. In addition, the patient navigator acts as a resource for the child’s care team, ensuring that care remains integrated. The NaviCare/SoinsNavi team envisions that the navigation centre will help facilitate more convenient and integrated care to support the physical, mental, emotional, and spiritual needs of the children and their families using a sustainable family-centred model of care.

About Shelley

Dr. Shelley Doucet holds a Bachelor of Nursing, Master of Science in Nursing, and a PhD in Interdisciplinary Studies. After completing her PhD, she joined the Department of Nursing & Health Sciences at UNB Saint John, where she now holds the Jarislowsky Research Chair in Interprofessional Patient-Centred Care and is an Associate Professor. Shelley has participated in the delivery of over 75 conference/workshop presentations, collaborated on grants securing over 30 million dollars in research support, published 24 multi-authored manuscripts, supervised 20 thesis students, and served on a number of university and community committees. Despite being early in her career, Shelley is recognized as an emerging leader in interprofessional collaborative practice for individuals with complex health conditions and is regularly invited to present her research in a variety of settings. Shelley is co-director of NaviCare/SoinsNavi, The New Brunswick Navigation Centre for Children with Complex Health Conditions.

About Jennifer

Jennifer Belyea holds Bachelors degrees in Arts (English & Psychology), Education, and Social Work. She is a mother to 3 children; her eldest has Angelman Syndrome, a significant complex health condition. As such, she has been a long time advocate and navigator of the healthcare system, both as a parent and a professional. In the early days of NaviCare/SoinsNavi, Jennifer lent her voice as part of the Family Advisory Council. She later joined NaviCare/SoinsNavi as Program Coordinator. A key part of Jennifer's role is to ensure that the Centre's objectives stay true to the families' needs, while finding ways to build collaborative relationships with various stakeholders.

About Sherry

Sherry Vautour is a Patient Navigator with NaviCare/SoinsNavi. She has been a registered nurse since 2006. Her nursing experience includes post operative care, acute care and psychiatric care, mostly with the paediatric population. As a childhood severe burns survivor, she has extensive first-hand experience what it is like to be a child who is living with a complex health condition. She is also a mother of 3 young children.

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