During this 60 minute webinar, we will:
- Provide a definition for complex childhood health conditions
- Describe the research that has led to the creation of NaviCare/SoinsNavi
- identify real life family challenges in caring for a child with a complex health condition
- Share lessons learned thus far and NaviCare/SoinsNavi’s plan for next steps:
- Mission and governance (i.e., Family Advisory Council)
- Current development stage and sustainability
- Highlight the unique role of our patient navigator in serving families of children with a complex health condition across NB
NaviCare/SoinsNavi is a bilingual virtual navigation centre in NB for children 19 years of age or younger with a complex health conditions. The primary aim of the centre is to help facilitate more convenient and integrated health, social, and educational care through the use of a patient navigator, who is also a registered nurse.. In addition, the patient navigator acts as a resource for the child’s care team, ensuring that care remains integrated. The NaviCare/SoinsNavi team envisions that the navigation centre will help facilitate more convenient and integrated care to support the physical, mental, emotional, and spiritual needs of the children and their families using a sustainable family-centred model of care.
Dr. Shelley Doucet holds a Bachelor of Nursing, Master of Science in Nursing, and a PhD in Interdisciplinary Studies. After completing her PhD, she joined the Department of Nursing & Health Sciences at UNB Saint John, where she now holds the Jarislowsky Research Chair in Interprofessional Patient-Centred Care and is an Associate Professor. Shelley has participated in the delivery of over 75 conference/workshop presentations, collaborated on grants securing over 30 million dollars in research support, published 24 multi-authored manuscripts, supervised 20 thesis students, and served on a number of university and community committees. Despite being early in her career, Shelley is recognized as an emerging leader in interprofessional collaborative practice for individuals with complex health conditions and is regularly invited to present her research in a variety of settings. Shelley is co-director of NaviCare/SoinsNavi, The New Brunswick Navigation Centre for Children with Complex Health Conditions.
Jennifer Belyea holds Bachelors degrees in Arts (English & Psychology), Education, and Social Work. She is a mother to 3 children; her eldest has Angelman Syndrome, a significant complex health condition. As such, she has been a long time advocate and navigator of the healthcare system, both as a parent and a professional. In the early days of NaviCare/SoinsNavi, Jennifer lent her voice as part of the Family Advisory Council. She later joined NaviCare/SoinsNavi as Program Coordinator. A key part of Jennifer's role is to ensure that the Centre's objectives stay true to the families' needs, while finding ways to build collaborative relationships with various stakeholders.
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